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Karen Moss - CEO and Board Director
Karen
Moss is the mother of Alexander,
born with bilateral clubfoot in January 2003.
After 8 weeks of casting below the knee,
Alex faced corrective surgery at 3 months. The
procedure was to take 3-4 hours per foot,
6 weeks in casts, removing pins under anaesthesia
and possible repeat surgery due to scar tissue
hindering natural development of his feet. Alex's future seemed to be one of potential
lifelong discomfort from arthritis, weak ankles
and stiff feet with limited mobility.
Unwilling to commit to surgery and frustrated by the lack of information
for parents of clubfoot babies, Karen researched
clubfoot treatment on the internet. She found
Dr Ponseti, an 89-year-old orthopaedic surgeon
based in Iowa USA. Dr Ponseti developed a non-invasive
treatment for clubfoot in the 1950's that was
95% successful for congenital clubfoot. This is
in direct contrast to over 80% surgery rate for
other casting methods. Karen flew with her husband and
baby Alex to Iowa. Within 16 days, Alex's twisted
clubfeet were 100% straight - before his scheduled
surgery date - corrected without surgery or pain.
Today, Alex is an active 5 year old. His feet are flexible,
pain-free and strong. They have full range of
motion, with no scar tissue or hindered development.
.
When asked why more people didn't
know about his method and why there were no Ponseti
trained doctors in South Africa after 50 years
of success with his treatment, Dr Ponseti said:
"It's the parents who get the doctors to
use my method".
This inspired Karen to bring his method to South Africa, ultimately
leading to STEPS Charity.
Karen is a magazine columnist, author
and businesswoman. Her website www.clubfoot.co.za
launched in November 2003. Within 2 years, her site
had over 50,000 worldwide hits and pages were translated
into Spanish, Portuguese, Norwegian, Swedish,
Hebrew, Mandarin and Bulgarian. South African
and UK surgeons recommend the website for parents
of babies with clubfoot.
Karen has generated media
coverage on TV, Radio and print. The publicity has a direct effect
on the quality of life for many children. Parents
of babies scheduled for surgery were able to cancel
it when they found out about the Ponseti Method.
Karen is passionate about STEPS and works
to raise awareness and funds. She answers queries
through her website, providing information and
emotional support for parents in South Africa
and other countries. She updates and finances
the website. She works with doctors to improve clubfoot treatment in both the private and public health care sector..
Dr Mark Eltringham - Orthopaedic
Surgeon
Dr Mark Eltringham is a Paediatric
orthopaedic surgeon at Sunninghill Clinic, Johannesburg.
He was the first South African surgeon to train
formally in the Ponseti Method in the USA in September
2003 and is a valuable member of the board.
Dr Eltringham is a highly regarded
expert in paediatric orthopaedic surgery, having
worked at the Johannesburg Hospital and trained
many other surgeons in various surgery procedures.
He keeps in touch with international medical trends
and travels for training in specialised methods,
pioneering these methods in South Africa.
Mark Eltringham does pro bono work
at clinics to help treat clubfoot in underprivileged
patients and works with other surgeons wanting
to learn the Ponseti and other new methods. He
works with Karen on raising publicity and gives
talks on treatments. He is concerned with correct
medical protocol and the importance of having
standardised treatment provided to babies and
children. He is a great asset to Steps Charity
and will help our cause within the medical fraternity
where he has influence.
Thabiso Sikwane - Media and
Government
Thabiso
Sikwane is the host of SAFM Afternoon Talk, a
radio talk show broadcast nationally Mondays to
Fridays. She has extensive radio and television
experience and MC's at corporate functions. Thabiso
has been involved with publicity for Steps Charity
from the beginning. She has seen the process of
Alex's treatment and its success. This has been
her inspiration to help other children affected
by clubfoot and other lower limb disorders.
The South African black population
has an incidence of clubfoot that is 3 times the
world average, which is approximately 1:750. There
is a dire need to get this method better known
and into more state hospitals and rural areas.
This is the area where Thabiso is very valuable
to Steps Charity. Because of her high media profile
and community interests, she has many influential
contacts in media, government (including the health
department) and other NGO's. Through her media
contacts and expertise, Thabiso is committed to
helping Steps Charity increase awareness and raise
funds through her contacts.
Jennifer Harding - Health Plan
Policy, Research and Marketing
 Jennifer
has a corporate background in large medical schemes
and corporate consulting on medical plans. Her
skills are in marketing, research for health guidelines
and sponsorship development.
Diane Zeller - Children's Physiotherapist
Diana is a practising physiotherapist
specialising in children, particularly with mobility
problems. She has access to physiotherapists and
podiatrists who attend workshops and ultimately
become partners in education on treatments for
children with clubfoot and other lower limb disorders.
Steve Moss - Board Director and
Business Advisor
Steve
is Alex's
father and MD of an Broadcast and Entertainment Technology consultancy. As Business
Advisor, he provides Steps with
management and and strategic skills.
Celia Champion
Corporate Liaison and Management
Celia has managed
a division of a corporate company. Her corporate skills and business contacts assist with STEPS general management, corporate
governance, business plan and establishing ties
with organisations that are of benefit to us.

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